Cartão de Visita do Facebook

quinta-feira, 28 de fevereiro de 2013

28 Fevereiro DIA DA DOENÇA RARA

Intracranial hypertension (IH) is an invisible disorder; people with IH often look fine, on the outside, but are, in fact, suffering terribly. It also is an illness that can strike anyone. The Foundation originally created the Wall of Hope on IHRF’s Facebook page in 2011 as part of the effort to raise public awareness of intracranial
hypertension and rare diseases for Rare Disease Day. It proved so popular that we are once again opening the Wall of Hope for your pictures for Rare Disease Day- February 28, 2013. Please join us in this grass-roots campaign to literally give IH and rare diseases a face—yours

http://www.ihrfoundation.org/intracranial/hypertension/more_info/wall-of-hope-2013/

http://www.ihrfoundation.org/

Intracranial hypertension (IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).

The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals.

Our mission is to discover why intracranial hypertension happens, along with new, effective treatments. Our ultimate goal is to find a cure.

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